May 4, 2022 | News, Uncategorized
In May 2022, The Progeria Research Foundation in partnership with Brigham and Women’s Hospital, and Boston Children’s Hospital convened a specialized meeting of high-level cardiologists and researchers to discuss the urgency of cardiac stenosis in children with...
Feb 11, 2022 | Events, Uncategorized
Happy Heart Health Month – and Happy Valentine’s Day! At PRF, we LOVE Heart Health Month – because treating and curing the heart disease that affects all children and young adults with Progeria is at the ‘heart’ of our mission. We hope you have a happy, healthy...
Sep 23, 2021 | News, Uncategorized
Check out our newsletter to read about FDA approval for the first-ever treatment for Progeria, learn how the research we fund has made remarkable progress toward the cure through genetic and RNA therapies, and get the scoop on all the exciting milestones we’re...
Jun 4, 2021 | News, Uncategorized
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 8th straight year! CharityNavigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 6% of the nonprofits evaluated....
Mar 18, 2021 | News, Uncategorized
In November, 2020, PRF brought over 370 registrants from 30 countries ‘together’ in our first-ever virtual scientific workshop. Attendees were given a platform to share their expertise in Progeria research and meet some of the children who will benefit from their...
Mar 11, 2021 | News, Uncategorized
We’re thrilled to share the results from two very exciting breakthrough studies on the use of RNA therapeutics in Progeria research. Both studies were co-funded by The Progeria Research Foundation (PRF) and co-authored by PRF’s Medical Director, Dr. Leslie Gordon....
Jan 6, 2021 | News, Uncategorized
Happy New Year! We hope everyone had a healthy, restful holiday. We are kicking off 2021 off with more exciting research news. In January, the science journal Nature published breakthrough results demonstrating that genetic editing in a mouse model of Progeria...
Nov 20, 2020 | News, Uncategorized
Breaking, exciting news! On November 20, 2020, PRF achieved an important piece of our mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval. Progeria now joins less than 5% of the rare diseases with an FDA-approved...
Nov 2, 2020 | Events, News
2025 International Scientific Workshop – Coming of Age 2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching...
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