Happy New Year! We hope everyone had a healthy, restful holiday. We are kicking off 2021 off with more exciting research news. Today, the science journal Nature published breakthrough results demonstrating that genetic editing in a mouse model of Progeria corrected...
Breaking, exciting news! On November 20, 2020, PRF achieved an important piece of our mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval. Progeria now joins less than 10% of the rare diseases with an FDA-approved treatment....
As we all navigate this uncertain time, our fight against Progeria remains steadfast. PRF staff and the clinical trial team have been working closely with our Progeria families around the world, to ensure their continued access to PRF’s vital services. Our programs...
Thank YOU! Through these uncertain times, one thing is certain: The Progeria Research Foundation is still working tirelessly to help families impacted by Progeria. PRF is there for the children and their families from day one, so for this year’s ONEpossible Campaign,...
First and foremost, we hope you are staying well. In light of the recent progression of COVID-19, and as we all navigate this uncertain time, we want to THANK YOU for your support and let you know that our fight against Progeria remains steadfast: PRF staff continue...
On March 1st, PRF Ambassador Meghan Waldron turned 19, and we celebrated with March Madness 2020: Where in the world is Meghan Waldron? We’ve shared photos from Meghan’s travels and hope they’ve inspired you to think about where your next adventure will be...
