Sep 19, 2023 | Events, Homepage News, Uncategorized
128th Bank of America Boston Marathon® Official Charity Partner: The 2024 Progeria Research Foundation Boston Marathon® Team PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our...
Jun 1, 2023 | Events, News
Recently published findings show the long-term benefits of lonafarnib have increased life expectancy by 35%! Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria! PRF co-founder and Medical...
Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....
Feb 11, 2022 | Events, Uncategorized
Happy Heart Health Month – and Happy Valentine’s Day! At PRF, we LOVE Heart Health Month – because treating and curing the heart disease that affects all children and young adults with Progeria is at the ‘heart’ of our mission. We hope you have a happy, healthy...
Jun 1, 2021 | Events, News
Since awarding our first research grant in 1999, world-class scientists have been leading Progeria research to novel breakthroughs and treatments that help children with Progeria live longer, healthier lives. PRF is planting the seeds of research in the most...
Nov 2, 2020 | Events, News
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
