The family of Sam Berns confirmed today that he passed away Friday evening, January 10, 2014 due to complications from Progeria. Sam, age 17, was diagnosed at 22 months of age with Progeria. His parents, Drs. Leslie Gordon and Scott Berns, established The Progeria...
After seeing Life According to Sam, our generous friend Robert Kraft issued a Matching Gift Challenge to help Sam and his friends, up to $500,000 from October 8-23rd to jump-start our $4 million campaign for the triple trial. Thanks to thousands of generous people, we...
As if this month weren’t exciting enough, on Tuesday, Oct. 15, Sam, his parents (PRF co-founders) Leslie and Scott, and the Directors of Life According to Sam will be the leading story on Katie Couric’s daytime show! (link no longer available) Tune in for this...
News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio clips and TV airings! Click...
The wonderful news of an effective treatment is being heard around the world, as families, researchers, and PRF supporters celebrate this historic milestone. We pay tribute to the many wonderful people and organizations that helped make this day possible. WE COULDN’T...
Thanks to PRF’s “Find the Other 150” (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get the support they...
The Progeria Research Foundation has joined forces with members of the Boston Bruins, creating Public Service Announcements (PSA’s) featuring players from Central and Eastern Europe, and Canada. Recorded in both English and their native languages, the...
Researchers at the National Institutes of Health and Massachusetts General Hospital in Boston, MA published a new study today in Science, Translational Medicine that may lead to a new drug treatment for children with Progeria.* Rapamycin is an FDA approved drug that...
The captivating connection between Progeria and aging continues to strengthen, as NIH researchers find link between telomeres and progerin. National Institutes of Health researchers have discovered a previously unknown link between Progeria and aging. The findings...
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