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PRF’s 2019 Newsletter

PRF’s 2019 Newsletter

Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
ONEpossible 2019 a Success!!

ONEpossible 2019 a Success!!

    PRF’s 2019 ONEpossible campaign was a success, and we’ve reached our $150,000 goal, all thanks to YOU. We hope you will join us for next year’s ONEpossible campaign!!    LEARN...