We’re thrilled to announce a milestone in our mission to treat and cure children with Progeria: In partnership with The Progeria Research Foundation, Eiger BioPharmaceuticals has submitted to the FDA the first part of its application seeking approval of the drug...
Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
Workshop 2020Speakers page Registration Abstract Guidelines Hotel Reservations Location and Travel CME Credits Organizing Committee We are proud to announce … The Progeria Research Foundation’s 10th International Scientific Workshop Since its inception in...
Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch of our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the...
Thank you so much to all runners, walkers, donors, sponsors, volunteers, and anyone else who participated in making PRF’s 18th Annual International Race for Research such a success!!Please enjoy the photos from the race HERE.Runners, click HERE to see your race...
PRF’s 2019 ONEpossible campaign was a success, and we’ve reached our $150,000 goal, all thanks to YOU. We hope you will join us for next year’s ONEpossible campaign!! LEARN...
