Jun 1, 2023 | Events, News
Recently published findings show the long-term benefits of lonafarnib have increased life expectancy by 35%! Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria! PRF co-founder and Medical...
Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....
Mar 15, 2023 | Homepage News, News, Uncategorized
We’re excited to share two thrilling research updates with you, published online today in the world’s top cardiovascular journal, Circulation (1): Biomarker in Progeria A new way to measure progerin, the toxic protein that causes Progeria, has been developed by...
Nov 15, 2022 | News, Uncategorized
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
Nov 7, 2022 | News, Uncategorized
Exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has inspired millions around the world, and today hit a new milestone: 50 million views on TEDx.com alone (with a grand total of 95 million when including views seen through TED.com). Sam’s talk is...
Oct 31, 2022 | News, Uncategorized
The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE! Here are just a few highlights: Two success stories involving breakthrough heart valve replacement...
