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The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!

Here are just a few highlights:

  • Two success stories involving breakthrough heart valve replacement surgery, following PRF’s first Aortic Stenosis Intervention Summit;
  • A two-page spread giving a glimpse into what some of the kids and young adults in our community have recently been up to;
  • A summary of how PRF is helping to ensure worldwide access to lonafarnib treatmentwhere there’s a will, there’s a way.

Please keep supporting PRF, so we can keep helping these extraordinary children live longer, healthier lives.


Together, We WILL Find the Cure!