Mar 3, 2026 | Homepage News, News, Uncategorized
PRF has entered into a manufacturing agreement with Forge Biologics to produce SamPro-2 – PRF’s investigational gene-editing therapy designed to correct the gene mutation that causes Progeria. This is a defining step toward Progeria gene therapy clinical trials....
Nov 1, 2025 | Events, Homepage News, Uncategorized
General Information Registration Workshop Sponsors Agenda Speakers Poster Abstract Submission Location and Travel PRF’s 12th International Scientific Workshop: Breakthroughs, Community & Hope In October 2025, 118 physicians, scientists, and advocates from 12...
Sep 25, 2025 | Homepage News, News, Uncategorized
Collaboration = Progress The Progerinin trial is a partnership between PRF, trial sponsor PRG Science & Technology (a Korean- based biotech company), Boston Children’s Hospital (the trial site), Brigham and Women’s Hospital (site for some trial tests), and of...
Aug 8, 2025 | Homepage News, News, Uncategorized
As described in the August 11, 2025, front-page New Yorker article**, entitled How an Ultra-Rare Disease Accelerates Aging, The Progeria Research Foundation is thrilled to announce the pioneering Progeria Gene Editing Program. **Click here to read the full article....
Jun 29, 2025 | News, Uncategorized
PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete! Earlier this month, we welcomed US-residents Merlin (23) and Kaylee (21) to their week-long trial visits at Boston Children’s Hospital. This groundbreaking trial...
May 29, 2025 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give PARALLEL JOURNEYS Thanks to the FDA-approved treatment lonafarnib, those with Progeria are living longer and healthier lives, while PRF explores other...
May 27, 2025 | Events, Uncategorized
The Center for Research in Molecular Medicine and Chronic Diseases (CiMUS) at the University of Santiago in Spain invited PRF co-founders to share their story at a special Rare Disease Day 2025 event. Organized and moderated by PRF researcher, Dr. Ricardo...
Nov 20, 2024 | Events, Uncategorized
Exciting news! Scottsdale, Arizona Jan. 18-26, 2025 Renowned automotive designer, artist and long-time PRF supporter Chip Foose has collaborated with RealTruck Inc. on a one-of-a-kind 2021 F-150 truck recently revealed at SEMA (Specialty Equipment Market Association)...
Oct 30, 2024 | News, Uncategorized
So much progress, so much to share!! PRF’s 2024 newsletter is rife with exciting updates about our global work – supporting the most promising research toward better treatments and the CURE, and our strategic awareness efforts to find and help all children with...
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