Oct 23, 2023 | News, Uncategorized
In partnership with Sciensus, The Progeria Research Foundation (PRF) is officially launching Progeria Connect to our full global community of families. We created this platform to help our small but diverse community make personal connections, have access to the...
Oct 15, 2023 | News, Uncategorized
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times! Sam was the inspiration behind the creation of PRF. He continues to inspire not only us in our...
Oct 6, 2023 | News, Uncategorized
Thanks to your support, the news you’re about to read is chock full of exciting updates about PRF happenings all over the world, and details on our progress toward additional treatments and the CURE. Here are just a few highlights: A brand-new Progeria test was...
Sep 19, 2023 | Events, Uncategorized
128th Bank of America Boston Marathon® Official Charity Partner The 2024 Progeria Research Foundation Boston Marathon® Team PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team...
Jul 25, 2023 | News, Uncategorized
PRF’s co-founder and Medical Director, Dr. Leslie Gordon, was recently invited to contribute to an educational video series produced by the National Organization for Rare Disorders (NORD), along with her colleague Dr. Francis Collins, Science Advisor to the President...