Jun 4, 2021 | News, Uncategorized
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 8th straight year! CharityNavigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 6% of the nonprofits evaluated....
Mar 18, 2021 | News, Uncategorized
In November, 2020, PRF brought over 370 registrants from 30 countries ‘together’ in our first-ever virtual scientific workshop. Attendees were given a platform to share their expertise in Progeria research and meet some of the children who will benefit from their...
Mar 11, 2021 | News, Uncategorized
We’re thrilled to share the results from two very exciting breakthrough studies on the use of RNA therapeutics in Progeria research. Both studies were co-funded by The Progeria Research Foundation (PRF) and co-authored by PRF’s Medical Director, Dr. Leslie Gordon....
Jan 6, 2021 | News, Uncategorized
Happy New Year! We hope everyone had a healthy, restful holiday. We are kicking off 2021 off with more exciting research news. In January, the science journal Nature published breakthrough results demonstrating that genetic editing in a mouse model of Progeria...
Nov 20, 2020 | News, Uncategorized
Breaking, exciting news! On November 20, 2020, PRF achieved an important piece of our mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval. Progeria now joins less than 5% of the rare diseases with an FDA-approved...
Nov 2, 2020 | Events, News
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
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