Mar 18, 2021 | News, Uncategorized
In November, 2020, PRF brought over 370 registrants from 30 countries ‘together’ in our first-ever virtual scientific workshop. Attendees were given a platform to share their expertise in Progeria research and meet some of the children who will benefit from their...
Mar 11, 2021 | News, Uncategorized
We’re thrilled to share the results from two very exciting breakthrough studies on the use of RNA therapeutics in Progeria research. Both studies were co-funded by The Progeria Research Foundation (PRF) and co-authored by PRF’s Medical Director, Dr. Leslie Gordon....
Jan 6, 2021 | News, Uncategorized
Happy New Year! We hope everyone had a healthy, restful holiday. We are kicking off 2021 off with more exciting research news. In January, the science journal Nature published breakthrough results demonstrating that genetic editing in a mouse model of Progeria...
Nov 20, 2020 | News, Uncategorized
Breaking, exciting news! On November 20, 2020, PRF achieved an important piece of our mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval. Progeria now joins less than 5% of the rare diseases with an FDA-approved...
Nov 2, 2020 | Events, News
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
Oct 3, 2020 | News, Uncategorized
As we all navigate this uncertain time, our fight against Progeria remains steadfast. PRF staff and the clinical trial team have been working closely with our Progeria families around the world, to ensure their continued access to PRF’s vital services. Our programs...
