Nov 20, 2020 | News, Uncategorized
Breaking, exciting news! On November 20, 2020, PRF achieved an important piece of our mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval. Progeria now joins less than 5% of the rare diseases with an FDA-approved...
Nov 2, 2020 | Events, News
2025 International Scientific Workshop – Coming of Age 2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching...
Oct 3, 2020 | News, Uncategorized
As we all navigate this uncertain time, our fight against Progeria remains steadfast. PRF staff and the clinical trial team have been working closely with our Progeria families around the world, to ensure their continued access to PRF’s vital services. Our programs...
May 30, 2020 | News, Uncategorized
Thank YOU! Through these uncertain times, one thing is certain: The Progeria Research Foundation is still working tirelessly to help families impacted by Progeria. PRF is there for the children and their families from day one, so for this year’s ONEpossible Campaign,...
Apr 1, 2020 | News, Uncategorized
First and foremost, we hope you are staying well. In light of the recent progression of COVID-19, and as we all navigate this uncertain time, we want to THANK YOU for your support and let you know that our fight against Progeria remains steadfast: PRF staff continue...
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