Uncategorized Archives - The Progeria Research Foundation

Get PRF’s 2025 Newletter here!

Sep 25, 2025 | Homepage News, News, Uncategorized

Collaboration = Progress The Progerinin trial is a partnership between PRF, trial sponsor PRG Science & Technology (a Korean- based biotech company), Boston Children’s Hospital (the trial site), Brigham and Women’s Hospital (site for some trial tests), and of...

New Yorker Features Progeria Gene Editing: PRF is on the Path to CURE PROGERIA!

Aug 8, 2025 | Homepage News, News, Uncategorized

As described in the August 11, 2025, front-page New Yorker article**, entitled How an Ultra-Rare Disease Accelerates Aging, The Progeria Research Foundation is thrilled to announce the pioneering Progeria Gene Editing Program. **Click here to read the full article....

PRF’s 12th International Scientific Workshop

Jul 30, 2025 | Events, Homepage News, Uncategorized

General Information Registration Workshop Sponsors Agenda Speakers Poster Abstract Submission Location and Travel Calling all researchers and clinicians involved in – or interested in – driving Progeria research toward new treatments and the cure! Join us...

New clinical trial with the drug Progerinin is officially underway

Jun 29, 2025 | Homepage News, News, Uncategorized

PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete! Earlier this month, we welcomed US-residents Merlin (23) and Kaylee (21) to their week-long trial visits at Boston Children’s Hospital. This groundbreaking trial...

ONEpossible 2025 June 1-July 15. Everywhere

May 29, 2025 | Events, Uncategorized

Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give PARALLEL JOURNEYS Thanks to the FDA-approved treatment lonafarnib, those with Progeria are living longer and healthier lives, while PRF explores other...

PRF Co-Founders Drs. Leslie Gordon and Scott Berns speak as thought leaders at CiMUS, Spain

May 27, 2025 | Events, Homepage News, Uncategorized

The Center for Research in Molecular Medicine and Chronic Diseases (CiMUS) at the University of Santiago in Spain invited PRF co-founders to share their story at a special Rare Disease Day 2025 event. Organized and moderated by PRF researcher, Dr. Ricardo...