Jun 1, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...
May 4, 2024 | Homepage News, News, Uncategorized
Effective Friday, May 3rd, 2024, Sentynl Therapeutics, Inc. (Sentynl), a U.S.-based biopharmaceutical company wholly-owned by Zydus Lifesciences, Ltd, has acquired global rights to lonafarnib (Zokinvy) from Eiger BioPharmaceuticals (Eiger). Zokinvy® is provided to...
Apr 4, 2024 | Events, Homepage News, Uncategorized
Calling all researchers and clinicians involved in – or interested in – driving Progeria research toward new treatments and the cure! Join us at PRF’s 12th International Scientific Workshop, taking place in Boston, Massachusetts U.S.A. Since we kicked off...
Jan 5, 2024 | Homepage News, News, Uncategorized
We’re thrilled to share that PRF has been awarded – for the 10th consecutive year – the highest 4-star Charity Navigator rating! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is awarded to fewer than 5% of the...
Oct 23, 2023 | Homepage News, News, Uncategorized
In partnership with Sciensus, The Progeria Research Foundation (PRF) is officially launching Progeria Connect to our full global community of families. We created this platform to help our small but diverse community make personal connections, have access to the...
Oct 15, 2023 | Homepage News, News, Uncategorized
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times! Sam was the inspiration behind the creation of PRF. He continues to inspire not only us in our...
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