Jun 29, 2025 | News, Uncategorized
PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete! Earlier this month, we welcomed US-residents Merlin (23) and Kaylee (21) to their week-long trial visits at Boston Children’s Hospital. This groundbreaking trial...
May 29, 2025 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give PARALLEL JOURNEYS Thanks to the FDA-approved treatment lonafarnib, those with Progeria are living longer and healthier lives, while PRF explores other...
May 27, 2025 | Events, Uncategorized
The Center for Research in Molecular Medicine and Chronic Diseases (CiMUS) at the University of Santiago in Spain invited PRF co-founders to share their story at a special Rare Disease Day 2025 event. Organized and moderated by PRF researcher, Dr. Ricardo...
Nov 20, 2024 | Events, Uncategorized
Exciting news! Scottsdale, Arizona Jan. 18-26, 2025 Renowned automotive designer, artist and long-time PRF supporter Chip Foose has collaborated with RealTruck Inc. on a one-of-a-kind 2021 F-150 truck recently revealed at SEMA (Specialty Equipment Market Association)...
Oct 30, 2024 | News, Uncategorized
So much progress, so much to share!! PRF’s 2024 newsletter is rife with exciting updates about our global work – supporting the most promising research toward better treatments and the CURE, and our strategic awareness efforts to find and help all children with...
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