Oct 9, 2024 | News, Uncategorized
The Progeria Research Foundation is honoring the life of our Progeria researcher and PRF spokesperson, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. Sammy was the oldest known person living with classic Progeria, which gave him a unique...
Sep 30, 2024 | Homepage News, News, Uncategorized
We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin. PRF will help fund and coordinate this trial to determine whether a new drug, called Progerinin, plus the life-extending Progeria drug...
Jul 24, 2024 | News, Uncategorized
In an article published today in the New York Times, PRF Medical Director Dr. Leslie Gordon and colleagues shared the phenomenal story of scientific collaborations that led to recent breakthroughs in genetic editing in Progeria. Partnerships with PRF’s long-time...
Jun 1, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...
May 4, 2024 | News, Uncategorized
Effective Friday, May 3rd, 2024, Sentynl Therapeutics, Inc. (Sentynl), a U.S.-based biopharmaceutical company wholly-owned by Zydus Lifesciences, Ltd, has acquired global rights to lonafarnib (Zokinvy) from Eiger BioPharmaceuticals (Eiger). Zokinvy® is provided to...
Jan 5, 2024 | News, Uncategorized
We’re thrilled to share that PRF has been awarded – for the 10th consecutive year – the highest 4-star Charity Navigator rating! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is awarded to fewer than 5% of the...
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