Oct 30, 2024 | News, Uncategorized
So much progress, so much to share!! PRF’s 2024 newsletter is rife with exciting updates about our global work – supporting the most promising research toward better treatments and the CURE, and our strategic awareness efforts to find and help all children with...
Oct 16, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give 129th Bank of America Boston Marathon® Official Charity Program The 2025 Progeria Research Foundation Boston Marathon Team The Progeria Research...
Oct 9, 2024 | News, Uncategorized
The Progeria Research Foundation is honoring the life of our Progeria researcher and PRF spokesperson, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. Sammy was the oldest known person living with classic Progeria, which gave him a unique...
Sep 30, 2024 | News, Uncategorized
We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin. PRF will help fund and coordinate this trial to determine whether a new drug, called Progerinin, plus the life-extending Progeria drug...
Jul 24, 2024 | News, Uncategorized
In an article published today in the New York Times, PRF Medical Director Dr. Leslie Gordon and colleagues shared the phenomenal story of scientific collaborations that led to recent breakthroughs in genetic editing in Progeria. Partnerships with PRF’s long-time...
Jun 1, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...
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