The Progeria Research Foundation offers several research-related programs that your child can participate in to help accelerate our movement toward treatment and cure:
Diagnostics testing so that children, families and medical caretakers can for the first time be given a definitive, scientific diagnosis. This can translate into earlier diagnosis, fewer misdiagnoses and early medical intervention to ensure a better quality of life for the children.
The PRF Cell & Tissue Bank provides medical researchers with genetic and biological material from Progeria patients and their families, so that research on Progeria and other aging-related diseases can be performed to bring us closer to finding the cure.
The PRF Medical & Research Database is a collection of medical records of Progeria patients from all over the world. The data is rigorously analyzed to determine the best course of treatments to improve the patient’s quality of life.