Jun 1, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...
May 4, 2024 | News, Uncategorized
Effective Friday, May 3rd, 2024, Sentynl Therapeutics, Inc. (Sentynl), a U.S.-based biopharmaceutical company wholly-owned by Zydus Lifesciences, Ltd, has acquired global rights to lonafarnib (Zokinvy) from Eiger BioPharmaceuticals (Eiger). Zokinvy® is provided to...
Jan 5, 2024 | News, Uncategorized
We’re thrilled to share that PRF has been awarded – for the 10th consecutive year – the highest 4-star Charity Navigator rating! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is awarded to fewer than 5% of the...
Oct 23, 2023 | News, Uncategorized
In partnership with Sciensus, The Progeria Research Foundation (PRF) is officially launching Progeria Connect to our full global community of families. We created this platform to help our small but diverse community make personal connections, have access to the...
Oct 15, 2023 | News, Uncategorized
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times! Sam was the inspiration behind the creation of PRF. He continues to inspire not only us in our...
Oct 6, 2023 | News, Uncategorized
Thanks to your support, the news you’re about to read is chock full of exciting updates about PRF happenings all over the world, and details on our progress toward additional treatments and the CURE. Here are just a few highlights: A brand-new Progeria test was...
Sep 19, 2023 | Events, Uncategorized
128th Bank of America Boston Marathon® Official Charity Partner The 2024 Progeria Research Foundation Boston Marathon® Team PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team...
Jul 25, 2023 | News, Uncategorized
PRF’s co-founder and Medical Director, Dr. Leslie Gordon, was recently invited to contribute to an educational video series produced by the National Organization for Rare Disorders (NORD), along with her colleague Dr. Francis Collins, Science Advisor to the President...
Jun 1, 2023 | Events, News
Recently published findings show the long-term benefits of lonafarnib have increased life expectancy by 35%! Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria! PRF co-founder and Medical...
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