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About Karen Betournay

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So far has created 10 blog entries.
Jun1, 2018

June 1st, 2018|Homepage News, News|

August 1: PRF’s 2018 ONEpossible Campaign Exceeds its Goal!  

A huge THANK YOU to the over 1,000 PRF donors who helped us raise $159,000! All funds from our annual summer campaign go directly to our vital clinical trials. We thank each and every ONE of you for making a cure POSSIBLE.
May15, 2018

May 15th, 2018|Homepage News, News|

May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.  

Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
Apr24, 2018

April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!

April 24th, 2018|Homepage News, News|

A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.