Oct 6, 2023 | News, Uncategorized
Thanks to your support, the news you’re about to read is chock full of exciting updates about PRF happenings all over the world, and details on our progress toward additional treatments and the CURE. Here are just a few highlights: A brand-new Progeria test was...
Sep 19, 2023 | Events, Uncategorized
128th Bank of America Boston Marathon® Official Charity Partner The 2024 Progeria Research Foundation Boston Marathon® Team PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team...
Jul 25, 2023 | Homepage News, News, Uncategorized
PRF’s co-founder and Medical Director, Dr. Leslie Gordon, was recently invited to contribute to an educational video series produced by the National Organization for Rare Disorders (NORD), along with her colleague Dr. Francis Collins, Science Advisor to the President...
Jun 1, 2023 | Events, News
Recently published findings show the long-term benefits of lonafarnib have increased life expectancy by 35%! Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria! PRF co-founder and Medical...
Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....