Oct 9, 2024 | News, Uncategorized
The Progeria Research Foundation is honoring the life of our Progeria researcher and PRF spokesperson, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. Sammy was the oldest known person living with classic Progeria, which gave him a unique...
Sep 30, 2024 | Homepage News, News, Uncategorized
We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin. PRF will help fund and coordinate this trial to determine whether a new drug, called Progerinin, plus the life-extending Progeria drug...
Jul 24, 2024 | News, Uncategorized
In an article published today in the New York Times, PRF Medical Director Dr. Leslie Gordon and colleagues shared the phenomenal story of scientific collaborations that led to recent breakthroughs in genetic editing in Progeria. Partnerships with PRF’s long-time...
Jun 1, 2024 | Events, Uncategorized
Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...
May 4, 2024 | News, Uncategorized
Effective Friday, May 3rd, 2024, Sentynl Therapeutics, Inc. (Sentynl), a U.S.-based biopharmaceutical company wholly-owned by Zydus Lifesciences, Ltd, has acquired global rights to lonafarnib (Zokinvy) from Eiger BioPharmaceuticals (Eiger). Zokinvy® is provided to...
Jan 5, 2024 | News, Uncategorized
We’re thrilled to share that PRF has been awarded – for the 10th consecutive year – the highest 4-star Charity Navigator rating! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is awarded to fewer than 5% of the...
Oct 23, 2023 | News, Uncategorized
In partnership with Sciensus, The Progeria Research Foundation (PRF) is officially launching Progeria Connect to our full global community of families. We created this platform to help our small but diverse community make personal connections, have access to the...
Oct 15, 2023 | News, Uncategorized
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times! Sam was the inspiration behind the creation of PRF. He continues to inspire not only us in our...
Oct 6, 2023 | News, Uncategorized
Thanks to your support, the news you’re about to read is chock full of exciting updates about PRF happenings all over the world, and details on our progress toward additional treatments and the CURE. Here are just a few highlights: A brand-new Progeria test was...
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