Oct 6, 2023 | News, Uncategorized
Thanks to your support, the news you’re about to read is chock full of exciting updates about PRF happenings all over the world, and details on our progress toward additional treatments and the CURE. Here are just a few highlights: A brand-new Progeria test was...
Sep 19, 2023 | Events, Uncategorized
128th Bank of America Boston Marathon® Official Charity Partner The 2024 Progeria Research Foundation Boston Marathon® Team PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team...
Jul 25, 2023 | News, Uncategorized
PRF’s co-founder and Medical Director, Dr. Leslie Gordon, was recently invited to contribute to an educational video series produced by the National Organization for Rare Disorders (NORD), along with her colleague Dr. Francis Collins, Science Advisor to the President...
Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....
Mar 15, 2023 | News, Uncategorized
We’re excited to share two thrilling research updates with you, published online today in the world’s top cardiovascular journal, Circulation (1): Biomarker in Progeria A new way to measure progerin, the toxic protein that causes Progeria, has been developed by...
Nov 15, 2022 | News, Uncategorized
2025 International Scientific Workshop – Coming of Age 2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching...
Nov 7, 2022 | News, Uncategorized
Exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has inspired millions around the world, and today hit a new milestone: 50 million views on TEDx.com alone (with a grand total of 95 million when including views seen through TED.com). Sam’s talk is...
Oct 31, 2022 | News, Uncategorized
The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE! Here are just a few highlights: Two success stories involving breakthrough heart valve replacement...
Oct 23, 2022 | News, Uncategorized
Friends, We are close to a very exciting milestone – Sam Berns’ eternally inspiring TEDx talk, ‘My Philosophy for a Happy Life,’ is quickly approaching 50 million views on TEDx.com. Sam’s talk is shown in middle-school classrooms to teach about growth mindset, in the...
Sep 26, 2022 | News, Uncategorized
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 9th straight year! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 5% of the nonprofits evaluated....
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