Summer/Fall 2015: Search for Children Concentrates in India and ChinaWith more than 2/3 of the unidentified children with Progeria believed to be in China and India, PRF has renewed efforts in those countries in its “Find the Other 150” campaign. (now called Find the...
In a wonderful display of global support for children with Progeria, 1 million people are following PRF through its dynamic and informative Facebook page. Follow and share so everyone can be part of our quest for the cure! In recognition of this milestone and all the...
As the year comes to a close, we thank all of you for your tremendous support, and hope you will consider a year-end gift towards our quest for the cure. 2014 was a year of exciting progress, including the discovery that the trial drug lonafarnib is giving the...
He has taught millions how to live a happy life. In honor of Sam and all the kids with Progeria, and in celebration of all who have embraced Sam’s philosophy, we are celebrating this milestone with a special campaign. Learn how you can help #LiveLikeSam Sam...
Winning an Emmy for “Exceptional Merit in Documentary Filmmaking”. we congratulate HBO Documentary Films and the talented team who have helped raise awareness of Progeria and PRF’s work through this exceptional film. LATS continues to impact viewers...
STUDY FINDS TRIAL MEDICATIONS INCREASE LIFESPANFOR CHILDREN WITH PROGERIAFirst-Ever Study of Progeria Children Drug Treatments ShowsProtein Farnesylation Inhibition Increased Lifespan BOSTON, MA (May 6, 2014) – A new study demonstrates there is evidence that a drug...
Recognized in Washington DC for its “significant impact in advancing research”, and attaining the top score from the premier nonprofit overseer, PRF is thrilled to be recognized in such significant ways. On March 12, 2014, PRF received Research!America’s...
The family of Sam Berns confirmed today that he passed away Friday evening, January 10, 2014 due to complications from Progeria. Sam, age 17, was diagnosed at 22 months of age with Progeria. His parents, Drs. Leslie Gordon and Scott Berns, established The Progeria...
After seeing Life According to Sam, our generous friend Robert Kraft issued a Matching Gift Challenge to help Sam and his friends, up to $500,000 from October 8-23rd to jump-start our $4 million campaign for the triple trial. Thanks to thousands of generous people, we...
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