The Progeria Research Foundation

PRF’s 12th International Scientific Workshop

Apr 1, 2025 | Events, Homepage News, Uncategorized

General Information Registration Agenda Speakers Poster Abstract Submission Location and Travel Calling all researchers and clinicians involved in – or interested in – driving Progeria research toward new treatments and the cure! Join us at Coming of Age...

PRF Co-Founders Drs. Leslie Gordon and Scott Berns speak as thought leaders at CiMUS, Spain

Feb 27, 2025 | Events, Homepage News, Uncategorized

The Center for Research in Molecular Medicine and Chronic Diseases (CiMUS) at the University of Santiago in Spain invited PRF co-founders to share their story at a special Rare Disease Day 2025 event. Organized and moderated by PRF researcher, Dr. Ricardo...

New clinical trial with the drug Progerinin is officially underway

Jan 29, 2025 | Homepage News, News, Uncategorized

PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete! Earlier this month, we welcomed US-residents Merlin (23) and Kaylee (21) to their week-long trial visits at Boston Children’s Hospital. This groundbreaking trial...

Long-time friend and PRF supporter Chip Foose supports PRF with truck auction!

Nov 20, 2024 | Events, Uncategorized

Exciting news! Scottsdale, Arizona Jan. 18-26, 2025 Renowned automotive designer, artist and long-time PRF supporter Chip Foose has collaborated with RealTruck Inc. on a one-of-a-kind 2021 F-150 truck recently revealed at SEMA (Specialty Equipment Market Association)...

Get PRF’s 2024 Newsletter here!

Oct 30, 2024 | Homepage News, News, Uncategorized

So much progress, so much to share!! PRF’s 2024 newsletter is rife with exciting updates about our global work – supporting the most promising research toward better treatments and the CURE, and our strategic awareness efforts to find and help all children with...

PRF is a member of the 2025 Bank of America Boston Marathon Official Charity Program!

Oct 16, 2024 | Events, Uncategorized

Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give 129th Bank of America Boston Marathon® Official Charity Program The 2025 Progeria Research Foundation Boston Marathon Team The Progeria Research...

Mourning the loss of PRF Ambassador, Sammy Basso

Oct 9, 2024 | News, Uncategorized

The Progeria Research Foundation is honoring the life of our Progeria researcher and PRF spokesperson, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. Sammy was the oldest known person living with classic Progeria, which gave him a unique...

BIG NEWS: Announcing the launch of a brand-new clinical drug trial!

Sep 30, 2024 | Homepage News, News, Uncategorized

We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin. PRF will help fund and coordinate this trial to determine whether a new drug, called Progerinin, plus the life-extending Progeria drug...

New York Times | July 24, 2024: A Cure for Progeria Could be on the Horizon

Jul 24, 2024 | News, Uncategorized

In an article published today in the New York Times, PRF Medical Director Dr. Leslie Gordon and colleagues shared the phenomenal story of scientific collaborations that led to recent breakthroughs in genetic editing in Progeria. Partnerships with PRF’s long-time...

ONEpossible 2024

Jun 1, 2024 | Events, Uncategorized

Give Join the Circle of Hope Become a Monthly Donor Matching Gifts Make a Planned Gift Donate Now More Ways to Give Good Things Come in 3’s! Niccolo, Alessandro and Sammy are among nearly 100 children and young adults with Progeria across the world who are benefitting...