Sep 25, 2025 | Homepage News, News, Uncategorized
Collaboration = Progress The Progerinin trial is a partnership between PRF, trial sponsor PRG Science & Technology (a Korean- based biotech company), Boston Children’s Hospital (the trial site), Brigham and Women’s Hospital (site for some trial tests), and of...
Aug 8, 2025 | Homepage News, News, Uncategorized
As described in the August 11, 2025, front-page New Yorker article**, entitled How an Ultra-Rare Disease Accelerates Aging, The Progeria Research Foundation is thrilled to announce the pioneering Progeria Gene Editing Program. **Click here to read the full article....
Jun 29, 2025 | Homepage News, News, Uncategorized
PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete! Earlier this month, we welcomed US-residents Merlin (23) and Kaylee (21) to their week-long trial visits at Boston Children’s Hospital. This groundbreaking trial...
Oct 30, 2024 | News, Uncategorized
So much progress, so much to share!! PRF’s 2024 newsletter is rife with exciting updates about our global work – supporting the most promising research toward better treatments and the CURE, and our strategic awareness efforts to find and help all children with...
Oct 9, 2024 | News, Uncategorized
The Progeria Research Foundation is honoring the life of our Progeria researcher and PRF spokesperson, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. Sammy was the oldest known person living with classic Progeria, which gave him a unique...
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