Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....
Mar 15, 2023 | News, Uncategorized
We’re excited to share two thrilling research updates with you, published online today in the world’s top cardiovascular journal, Circulation (1): Biomarker in Progeria A new way to measure progerin, the toxic protein that causes Progeria, has been developed by...
Nov 15, 2022 | News, Uncategorized
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
Nov 7, 2022 | News, Uncategorized
Exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has inspired millions around the world, and today hit a new milestone: 50 million views on TEDx.com alone (with a grand total of 95 million when including views seen through TED.com). Sam’s talk is...
Oct 31, 2022 | News, Uncategorized
The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE! Here are just a few highlights: Two success stories involving breakthrough heart valve replacement...
Oct 23, 2022 | News, Uncategorized
Friends, We are close to a very exciting milestone – Sam Berns’ eternally inspiring TEDx talk, ‘My Philosophy for a Happy Life,’ is quickly approaching 50 million views on TEDx.com. Sam’s talk is shown in middle-school classrooms to teach about growth mindset, in the...
Sep 26, 2022 | News, Uncategorized
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 9th straight year! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 5% of the nonprofits evaluated....
May 4, 2022 | News, Uncategorized
In May 2022, The Progeria Research Foundation in partnership with Brigham and Women’s Hospital, and Boston Children’s Hospital convened a specialized meeting of high-level cardiologists and researchers to discuss the urgency of cardiac stenosis in children with...
Feb 11, 2022 | Events, Uncategorized
Happy Heart Health Month – and Happy Valentine’s Day! At PRF, we LOVE Heart Health Month – because treating and curing the heart disease that affects all children and young adults with Progeria is at the ‘heart’ of our mission. We hope you have a happy, healthy...
Sep 23, 2021 | News, Uncategorized
Check out our newsletter to read about FDA approval for the first-ever treatment for Progeria, learn how the research we fund has made remarkable progress toward the cure through genetic and RNA therapies, and get the scoop on all the exciting milestones we’re...
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