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A Note to our PRF Community

A Note to our PRF Community

​First and foremost, we hope you are staying well. In light of the recent progression of COVID-19, and as we all navigate this uncertain time, we want to THANK YOU for your support and let you know that our fight against Progeria remains steadfast: PRF staff continue...
Application to FDA for lonafarnib approval is COMPLETE!

Application to FDA for lonafarnib approval is COMPLETE!

Application to FDA for lonafarnib approval is COMPLETE!    During an otherwise difficult time for our world, I am happy to share a bright spot: Eiger BioPharmaceuticals has completed submission of a New Drug Application (NDA), seeking approval – in Europe and...
PRF’s 2019 Newsletter

PRF’s 2019 Newsletter

Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
‘Find the Children’ campaign launches in India

‘Find the Children’ campaign launches in India

Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch of our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the...
ONEpossible 2019 a Success!!

ONEpossible 2019 a Success!!

  PRF’s 2019 ONEpossible campaign was a success, and we’ve reached our $150,000 goal, all thanks to YOU. We hope you will join us for next year’s ONEpossible...
Exciting Updates!

Exciting Updates!

The Progeria Research Foundation has some exciting updates we would like to share! We are excited to present our new logo! The new logo features a modern look, while keeping the iconic bird and Sam Berns’ handprint. We are especially proud to introduce our new...
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