The Progeria Research Foundation

For the Children ♥ For the Cure

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Vision

Our vision is a world in which every child with Progeria is cured.

Mission

To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

Vision

Our vision is a world in which every child with Progeria is cured.

Mission

To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

News

Mission Milestone! European Medicines Agency (EMA) recommends Zokinvy for approval in Europe

May 20, 2022

PRF and Eiger BioPharmaceuticals announced today that a positive opinion has been issued from the EMA recommending approval for Zokinvy, a breakthrough treatment for Progeria and processing-deficient progeroid laminopathies (PL).

International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit

May 4, 2022

In May 2022, The Progeria Research Foundation in partnership with Brigham and Women’s Hospital, and Boston Children’s Hospital will convene a specialized meeting of high-level cardiologists and researchers to discuss the urgency of cardiac stenosis in children with...

Happy Heart Health Month – and Happy Valentine’s Day!

Feb 11, 2022

At PRF, we LOVE Heart Health Month – because treating and curing the heart disease that affects all children and young adults with Progeria is at the ‘heart’ of our mission.

November 2 – 4, 2022: PRF’s 11th International Scientific Workshop

Nov 6, 2021

We’re starting our engines and revving up for The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!

Get PRF’s 2021 Annual Newsletter here!

Sep 23, 2021

Check out our newsletter to read about FDA approval for the first-ever treatment for Progeria, learn how the research we fund has made remarkable progress toward the cure through genetic and RNA therapies, and get the scoop on all the exciting milestones we’re celebrating right now.

Get Involved

Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.