On March 1st, PRF Ambassador Meghan Waldron turned 19, and we celebrated with March Madness 2020: Where in the world is Meghan Waldron? We've shared photos from Meghan’s travels and hope they've inspired you to think about where your next adventure will be once we're...
We’re thrilled to announce a milestone in our mission to treat and cure children with Progeria: In partnership with The Progeria Research Foundation, Eiger BioPharmaceuticals has submitted to the FDA the first part of its application seeking approval of the drug lonafarnib as a treatment for Progeria.
Get exciting updates on our progress over the past year, learn why we now refer to the population we serve as children – and young adults – with Progeria, check out the people, the science, and the events that got us where we are today, and SO MUCH MORE!
Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the unique care they need.
PRF’s 18th Annual International Race for Research is complete! Thank you to all who helped make it a success! Get your photos and official race times here.
THANK YOU to all of our donors who helped us meet our goal. You are all ONE to make the cure POSSIBLE!
The Progeria Research Foundation has some exciting updates we would like to share!
Thank YOU for celebrating Meghan’s March Madness with us! Because of all of you we raised over $19,000, which will go directly to our mission to find the cure! We hope you enjoyed getting to know Meghan. If you haven’t seen her video – check it out now!
Find out how PRF supporters made 2018 a tremendous year of progress.