News
PRF now collaborating with Sentynl Therapeutics, new global owner of lonafarnib treatment (Zokinvy©)
Effective Friday, May 3, Sentynl Therapeutics is responsible for the manufacture and distribution of Zokinvy, the FDA-approved treatment for Progeria.
We’re Hiring!
Join us in achieving our mission and exemplifying PRF’s core values, while making a difference in the lives of children and young adults living with Progeria around the world!
We did it – A decade of top Charity Navigator Ratings!
For the 10th straight year, PRF has earned the highest possible rating by the nation’s most trusted charity evaluator.
Global launch of PRF’s brand-new family engagement platform, Progeria Connect!
Calling all families impacted by Progeria! It’s time to get connected – to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.
EXCITING NEWS – Sam Berns’ TEDx Talk Hits 100 Million Cross-Platform Views!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF Newsletter 2023
PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
THANK YOU for making our 2023 ONEpossible Campaign a huge success!
ONEpossible 2023, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF continues to make a dramatic impact – both on the length and quality of life for children and young adults with Progeria.
Team PRF runs the Boston Marathon again!
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community.
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