News
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
THANK YOU for making our 2023 ONEpossible Campaign a huge success!
ONEpossible 2023, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF continues to make a dramatic impact – both on the length and quality of life for children and young adults with Progeria.
Team PRF runs the Boston Marathon again!
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community.
Exciting research milestones in treatment evaluation and life extension!
Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?
PRF’s 11th International Scientific Workshop was a success!
Thank you to all of those who attended The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!
Sam Berns TEDx Talk Hits 50 Million Views!!
Wow – exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has inspired millions around the world, and today hit a new milestone: 50 million views on TEDx.com alone (with a grand total of 95 million times, including on TED.com).
Get PRF’s 2022 Newsletter here!
The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
In Honor of Sam’s Birthday – Help us reach 50 million views!
We are close to a very exciting milestone – Sam Berns’ eternally inspiring TEDx talk, My Philosophy for a Happy Life, is quickly approaching 50 million views on TEDx.com.
Charity Navigator 9 Years in a Row!
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 9th straight year! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 5% of the nonprofits evaluated....
International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit
In May 2022, The Progeria Research Foundation in partnership with Brigham and Women’s Hospital, and Boston Children’s Hospital convened a specialized meeting of high-level cardiologists and researchers to discuss the urgency of cardiac stenosis in children with...
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