Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
Progeria is an ultra-rare, fatal, “rapid-aging” disease that afflicts children who, without the FDA-approved treatment lonafarnib, die of heart disease at an average age of 14.5 years. PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria, and is making phenomenal progress toward that goal.
News
Global launch of PRF’s brand-new family engagement platform, Progeria Connect!
Calling all families impacted by Progeria! It’s time to get connected – to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.
EXCITING NEWS – Sam Berns’ TEDx Talk Hits 100 Million Cross-Platform Views!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF Newsletter 2023
Hot off the presses: PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
We’re Hiring!
PRF is seeking an experienced Donor Database Manager to join our team. This is a full-time, hybrid role, where the applicant would need to be able to reliably commute to our Peabody office. We are looking for a passionate, enthusiastic, and analytical individual who is excited about data integrity, loves to improve workflow, and can reform donor data processes.
Get Involved
Our lonafarnib clinical trials enrolled 100 children from 40 different countries to test this now-FDA-approved treatment. Because of your support, these children and young adults are living longer, healthier lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
Meet the Kids
We hope their stories inspire you to support PRF, so those dreams can come true.
Events
Dining for a Cause at Not Your Average Joes
December 12, 2023, 210 Andover Street, Peabody, MA
*Present the attached flyer to your server and PRF will receive 15% of your total purchase (excluding alcohol, tax, and gratuity).
Dining for a Cause at Not Your Average Joes
December 12, 2023, 210 Andover Street, Peabody, MA
*Present the attached flyer to your server and PRF will receive 15% of your total purchase (excluding alcohol, tax, and gratuity).
Sign Up
for Our
Newsletter!
Together, we
WILL
find the cure!
